Patient Experience

Patients and families should be involved in all improvement work.  This section includes work focused on patient experience providing care that is respectful of and responsive to individual patient preferences and needs.

Resources

  • Through speaking with RCPCH Members, child health workers and reviewing existing resources, it was identified that there was a lack of practical “how to” materials to support professionals in delivering face to face sessions with children, young people and families.

    The impact was twofold...

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  • The Young Epilepsy app is a free information and support tool designed primarily for young people with epilepsy, their parents and carers. The app includes a seizure video function, symptom log and diary to help keep track of seizures and aid diagnosis. It also features key emergency and contact...

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Best practices

  • The Epilepsy Passport is designed as a paper record of relevant and up-to-date clinical information to be carried by children and young people or their parents and carers. It is available to download as a pdf from the RCPCH website. It is expected that the form will be filled in at epilepsy...

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