Voices and Views

Patients and families should be involved in all improvement work.  This section includes work focused on the patient voices and views ensuring that patient values guide all clinical decisions.

Resources

  • NHS England identified a need for improving practice and processes for involving children and young people in specialised commissioning across England. The impact on patients is that their needs are not known or met at the top level of a specialised commissioning process, which takes place on a...

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  • Anecdotal feedback was received by members of College committees (patient representatives, clinical and staff) that there was a need to improve the approach to patient voice in committees and to think about alternative options that are meaningful, relevant and proportionate.

    There was a...

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Best practices

  • The Epilepsy Passport is designed as a paper record of relevant and up-to-date clinical information to be carried by children and young people or their parents and carers. It is available to download as a pdf from the RCPCH website. It is expected that the form will be filled in at epilepsy...

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